Make a Place for
Your Illness and Put It in Its Place!
by Pauline Salvucci
"A place
for everything, and everything in its place." That may be a fine
idea if you're eyeing the clutter on the living room floor, or a
pile or two of old magazines and catalogues collecting dust in a
corner. But what has it got to do with coping with illness? Plenty.
Illness is never a welcomed guest in anyone's life. However, when
it becomes a visitor in yours, in many cases, it's there to stay.
How you cope with it will determine, in great part, how well you
live your life. Of the three primary factors that measure your
ability to cope: your attitude, the social context of your life, and
the quality of the resources available to you, your attitude becomes
the foundation upon which the others build.
Making a place in your life for illness may sound like a strange
thing to do, but it's necessary if you want to learn how to cope
with your disease and put it in its place. Here are some suggestions
to help you:
Acceptance and Denial are Normal Responses
Acceptance and denial are normal responses to any major change,
let alone a chronic illness. When you begin to accept having an
illness, you open yourself to interact with it. This helps you make
a place for illness in your life. Some forms of illness limit you
and contribute to your feeling different from other people. The
thing that makes you different from others is what disease does to
your body and how it can affect your emotions. Adjusting to this can
be tough enough, don’t make it tougher by loosing you’re sense of
self, your integrity, and, most of all, your sense of humor.
Accepting yourself as a person living with an illness is a process.
It doesn't happen all at once. Don't be harsh on yourself when you
fluctuate between accepting your disease and denying it. Acceptance
isn't something you do once and for all. It’s a process. Little by
little as you accept your illness, you will make room for it in your
life.
Adapting Takes Time and Patience
Like an onion, you peel off one layer of change at a time. The
changes you are faced with challenge your ability to adapt. You may
have to let go of, or even say goodbye to some activities in your
life, either for a time, or perhaps permanently. Grieve this loss.
Create a ritual to say goodbye to what is no longer possible for you
to do, but don't deny those parts of your life which you enjoyed and
which were important to you. They are a real part of your history
and deserve your respect. Some of your life may be different
than it was before, but don't treat your past and the things you
enjoyed as if they never existed. As you make the changes that your
illness requires, you can become more flexible and creative in
adapting to change. Keep a journal of the changes you've already
made and how you made them. This can serve as a reminder and as a
guide for making others as well. As you develop a greater degree of
flexibility in adapting to change, the easier change becomes. Above
all, don’t lose heart!
Befriend Illness as Part of Your Life
You already know how illness affects your body. Now get to know
your relationship with it. If you consider your disease an enemy to
be crushed, or an unwelcome guest you refuse to tolerate, how will
you allow your illness to be what it is, a part of your life you can
learn to befriend? Do you remember what Lincoln said about a house
being divided against itself unable to stand? If you're divided
against yourself by refusing to get to know this illness, or by
waging war against it, how can you befriend it? Consider giving your
illness a name—talk with it—write a letter. Speak or write from your
heart. Include everything you think and feel about your uninvited
guest. Don't keep your thoughts running around in your mind creating
havoc. Then, listen to what your illness says to you in return. If
you find this difficult to do, don't be discouraged. It is
difficult, but there are rewards. An uneasy alliance is better than
none at all.
Feel Like You're Losing Yourself?
Do you feel as if your blue moods are turning into dark
depression? Do you do less for yourself on the days when you could
be doing more? Do you isolate yourself from your loved ones and
friends? If over a period of time, you experience these feelings on
a regular basis and can't shake them, don't hesitate to find
professional help. Ask your doctor to refer you to a therapist whose
specialty is working with people with chronic illness. These
therapists can help you to make your way through difficult times.
Yes, it's important to talk with your friends and family, but
talking with a professional can be very freeing. They are available
to help you sort out your experiences and the many feelings and
thoughts you have about yourself and your illness. This isn't the
time to "tough it out", or attempt to dismiss your feelings with a
mind over matter mentality. Allow yourself to get whatever help you
need. It can make a real difference in your life.
Too Much Illness Talk?
Do you feel that talking about illness is taking more of your
time and energy than you would like it to? Is it wearing on your
family and friends? That can happen, especially when you're first
learning about your illness. If it becomes a habit and you begin to
lose perspective, here's a way to regain your balance. Create "talk
space". Choose a comfortable place in a room in your home and make
time to talk about your disease with your partner and family. Let
them know what you're feeling and thinking. This is a time for
honest sharing, for you and for your loved ones. Allow this "talk
space" to be the place and time where you discuss your illness. Keep
the rest of your home an "illness free talk zone". This will allow
you and your family to enjoy one another's company and conversation
without reverting to the topic of illness.
Seeing With New Eyes Doesn't Mean Looking Through Rose
Coloured Glasses
When it comes to putting illness in its place, you might try
seeing with new eyes. When it takes you more time to do just about
everything, when simple tasks frustrate you because they're not so
simple to do anymore, when the familiar becomes foreign, when you
can not do the many things you once loved doing, maybe seeing with
new eyes can help. If you were an artist and can no longer paint,
you can still go to museums or art galleries. If you can't do that,
you can enjoy art on the Internet and in books. If you worked with
your hands and can no longer use tools to do a job or hobby, teach
someone else to do what you know how to do. Share your knowledge and
lend your expertise. If you loved nature and the outdoors, but can
no longer hike, drive along scenic roadways and enjoy the beauty and
majesty of nature. Find a way to keep what you have been passionate
about in life. It takes time, work, patience, spirit and heart to
make a place for illness in your life. Seeing with new eyes is a
tribute to your courage and ability to put illness in its place.
© Copyright 2000 by Pauline Salvucci

Pauline Salvucci may be contacted at
http://www.SelfCareConnection.com
Pauline@SelfCareConnection.com.
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Pauline Salvucci, M.A., is a former medical family therapist, a
personal coach, founder and President of Self Care Connection, LLC,
and author of the "Self-Care Now!" booklet series. Her specialty is
coaching men and women at midlife -- particularly those living with
chronic health conditions and family caregivers who are "sandwiched"
between their families and their aging parents. E-mail: Pauline@SelfCareConnection.com
Website: http://www.SelfCareConnection.com